The Association publishes information for health professionals to help improve the care received by Raynaud's and scleroderma sufferers. To download the publications order form please click here.
A GUIDE FOR HEALTH PROFESSIONALS
The Raynaud’s & Scleroderma Association has published a booklet, ‘Raynaud’s & Scleroderma: A Guide for Health Professionals.’ Written by Professor Chris Denton, Professor of Experimental Rheumatology at the Royal Free Hospital in London, the booklet gives details of diagnosis, subsets of the condition, management and treatment, emphasising the importance of early diagnosis. This informative booklet should be of particular interest to health professionals, especially general practitioners and junior doctors. One goal of the booklet is to enable health professionals encountering scleroderma for the first time to put cases into appropriate context within the spectrum of disease. Health professionals can request a copy by sending an A5 SAE to: RSA, 112 Crewe Road, Alsager, Cheshire ST7 2JA. Please state your work address including the department in which you are based. Alternatively, to download a copy click here.
SPECIALIST NURSES
Advice lines provided by these nurses are proving to be invaluable to members of our Association. This aspect of our work is crucial as many people once diagnosed, feel the need to speak to a health professional. As their disease progresses, vital support is often required at times when a doctor is not available. Feedback from patients is very positive and many feel that this service is their lifeline.
It should be emphasised that the nurses who run the advice lines also have a very busy schedule within their hospital and it is inevitable that on many occasions there will be an answerphone. Some of the nurses work part time and therefore if it is their day off, or at a weekend it may take a little longer to respond to the answerphone. These advice lines are not intended for use in an emergency and are not a replacement for care by a G.P.
HEALTH PROFESSIONAL BOOKLETS
Raynaud's & Scleroderma - A Guide for Health Professionals
The Role of the Nurse
The Role of the Podiatrist
Oral and Dental Aspects of Scleroderma
The Role of the Physiotherapist
The Role of the Occupational Therapist
The Lung in Scleroderma
Iloprost Information
