Welcome to the Home Page of the Raynaud's & Scleroderma Association, a national charity and self help organisation, committed to supporting patients and carers who have these conditions.
Raynaud's is a common condition in which blood is prevented from reaching the extremities of the body, mainly the fingers and toes, on exposure to the cold or any slight change in temperature. A small number of people who have Raynaud's also develop scleroderma, a disease which affects the connective tissue.
Scleroderma means hard skin but the hardness is not limited to the skin - the internal organs and their blood supply may become damaged. Scleroderma can be devastating not only for the person who has the condition but also for the families concerned. We offer a very personal service, always available to answer questions, offer advice, reassurance and support. Further advice can be obtained through the nurse advice lines available to members and part funded by the Association.
For a free information pack call 0800 917 2494 or send an SAE to: RSA, 112 Crewe Road, Alsager, Cheshire ST7 2JA
Alternatively, email:
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Our aims are to promote a better communication between doctors and patients, to disseminate information and to raise funds for research and welfare projects. Research is essential if we are to determine the cause and find better treatments in the future. Newsletters are issued quarterly giving information on research and treatments which are available. Publications on Raynaud’s, scleroderma and related conditions are available from the organisation, details of which are on this website.
In order to continue our work we rely on donations. Every penny donated goes towards funding research and welfare projects. If you wish to make a donation please click the donate button at the top of this page.
Pages from this website together with the patient information leaflets can be downloaded or are available by sending a 2nd class stamp to the Association for each leaflet requested (UK only).
Why join the RSA?
Membership will entitle you to:
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A quarterly newsletter. 'HOT NEWS' gives up to date medical information, tips and ideas from fellow sufferers, advice on coping with a chronic condition and a regular Doc Spot. Hot News ensures that members are kept updated on the most current treatments and research.
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Access to our Nurse Advice Lines
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Support for sufferers and carers
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Details of products to help keep you warm and practical aids for daily living.
To download a sample of 'Hot News' click here.
UK MEMBERSHIP RATES
£12.00 Annual
£8.00 Annual Senior Citizen
Multi-membership is available (see application form)
If you live in the UK download our Application Form and return it with your payment. Please make cheques payable to 'Raynaud's & Scleroderma Association' and send to the address below.
Raynaud's & Scleroderma Association
112 Crewe Road, Alsager, Cheshire ST7 2JA
Telephone: 01270 872776
Freephone: 0800 917 2494 (for UK enquiries only)
Fax: 01270 883556
Email:
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