Welcome to the Home Page of the Raynaud's & Scleroderma Association, a national charity and self help organisation, committed to supporting people who have these conditions and their carers.
Raynaud's is a common condition in which blood is prevented from reaching the extremities of the body, mainly the fingers and toes, on exposure to the cold or any slight change in temperature. A small number of people who have Raynaud's also develop scleroderma, a disease which affects the connective tissue.
Scleroderma means hard skin but the hardness is not limited to the skin - the internal organs and their blood supply may become damaged. Scleroderma can be devastating not only for the person who has the condition but also for the families concerned. We offer a very personal service, always available to answer questions, offer advice, reassurance and support. Further advice can be obtained through the nurse advice lines available to members and part funded by the Association.
Our aims are to promote a better communication between doctors and patients, to disseminate information and to raise funds for research and welfare projects. Research is essential if we are to determine the cause and find better treatments in the future. Newsletters are issued quarterly giving information on research and treatments which are available. Publications on Raynaud’s, scleroderma and related conditions are available from the organisation, details of which are on this website. You can also visit our free support network here where you can learn from other people's experiences and add your own to the mix.
In order to continue our work we rely on donations. Every penny donated goes towards funding research and welfare projects. There are 10 million people in the UK with Raynaud's. If everyone gave £1.00 just think how much research we could fund!
If you wish to make a donation please click the donate button at the top of this page.
Pages from this website can be downloaded. Leaflets are available by sending a 2nd class stamp to the Association for each leaflet requested (UK only). Our support network, delivered through HealthUnlocked, is also free and we welcome your comments and questions. It's a great way to learn more from each other so please join. To 'like' the RSA Facebook page click here.
Working in partnership
The Raynaud's & Scleroderma Association is pleased to be working in parternship with The Scleroderma Society. We will be working together on various projects to increase knowledge and to reduce overlap and also costs. Look out for jointy produced leaflets and other material in the future. Why not take a look at their physiotherapy leaflet here.